I think I last left off telling you about how well Alivia was tolerating the eye patch. Feel free to catch up on previous posts regarding Alivia’s Intermittent Exotropia HERE. Since, and unfortunately, I’ve been seeing her strong eye now deviate outwards. After a phone discussion with her Ophthalmologist, it was recommended that I stop the patch for at least a week or two to see how her eyes are doing. If I’m not seeing her strong eye deviate, I can resume patching. The goal, according to her doctor, is to keep the vision in both eyes as equal as we can. As a reminder, the patching was not to treat the eye from deviating but to assist her in using the eye muscle in her weaker eye thus preventing vision deterioration/loss.
The hubby and I are, to say the least, a bit sad and disappointed. We hate to think that treatment actually caused the same condition to present itself in her healthy eye. Of course, we were well aware of the risk we were taking when we decided to treat her with the patch. I will not say that we made the wrong decision. In fact, it seemed like a no brainer at the time especially considering the alternative which was to do nothing.
I’ve never posted any pictures of Alivia’s eye actually deviating and as I sit here typing this, I’m still trying to figure out why. I know I still feel hesitant but I can’t figure out the reasoning behind this emotion. In away, I feel bad just looking at pictures of her when her eye is not working properly. It makes me sad. Am I afraid others will be sad for her too? Maybe a little. I guess I don’t want people to feel bad for her. I am VERY protective. Mostly, though, I wish I could control those beautiful eyes of hers myself. I would rip out my own and give them to her if I could.
Again, and I always feel the need to reiterate this but, I know this is not the worst thing that she could have. I realize there is so much worse out there, but it still doesn’t mean that I can’t or shouldn’t feel the things I’m feeling. We all want our children to be medically perfect from the top of their head right down to their adorable little piggy toe right?
The only reason I decided to post this picture is to help someone who may be wondering if their little one has the same thing. I know that just reading about it isn’t enough and that a picture, well, speaks a thousand words. Looking at the picture you can see the left eye (her right) is deviating outwards. This used to be her healthy eye. The right eye (her left) is focusing on whatever it is she is looking at which is actually the one diagnosed with the deviation. In this picture, it is working properly.
Anyhow, for those out there that want to talk or have any questions, please feel free to contact me via my email me button in my sidebar to the right. I can’t always respond to comments because some of you are marked as noreply-comment@blogger which doesn’t allow me to see your email address. In case you missed it, you can find a previous post I published on how to change your Blogger settings so that your email can be viewed when leaving comments HERE.